When I was in high school, college and beyond I loved to dance. Anywhere, anytime. Give me a decent beat and the smallest of spaces and you would have found me at the very least doing a little jig. Give me a dance floor and I was in my element. The rhythm of the music carried me away to my happy place. Then came myalgic encephalomyelitis (ME).Read More
May 12th is the day that has been dedicated as Myalgic Encephalomyelitis (ME) Awareness Day around the world. For me, and millions of others, every day is ME day.Read More
When I was me…
I always greeted you with a smile. I may have tried to say something funny to put a smile on your face and I was always excited about whatever plans we had for the day.
When I was me…Read More
Life is full of constant choices. Some are small and meaningless and others are life-changing. The key and beauty of it all is that there is an abundance of daily choices. Every day presents a fresh set of choices and it is up to each one of us to choose our day and what impact on the world we will or won’t make with them.Read More
The moment I realized I was uniquely abled and not just someone with extra limitations, it hit me like a ton of bricks. I still don’t understand exactly why this was the case. I don’t define myself by these limitations. I realize there is so much more to me. But the moment it hit me that I was uniquely abled… I nearly crumbled into a million pieces.Read More
I am an incurably optimistic person. That is who I am, my heart, my soul and how I eat, live and breathe. Sometimes though, life even gets to the best of us optimists and that’s OK. Sometimes you have to give yourself permission to simply absorb reality in its rawest form.Read More
St. Cloud Times
Do you believe cancer exists? That heart attacks happen? Or that an aneurysm can kill you? That Alzheimer’s really causes memory loss? Or that strokes can cause paralysis? Of course you do — they exist and they happen, sadly, every day.
Do you know what else happens every day though? Myalgic encephalomyelitis.
Duluth News Tribune - Opinion sectionRead More
Why do I applaud Michael J. Fox? How can I not!
He exemplifies fighting the good fight for all of us who live our lives day in and day out with chronic illness. He’s a true inspiration!Read More
After a year of living with a chronic illness, I’ve learned you can never fully predict your day, the challenges that lie ahead and how the loss of control that comes with all of that can be very frustrating (especially for us type A personalities!). However, I have also learned there is a lot you can do to place the odds of a good or better day in your favor.Read More
You can read quite a bit on the internet about the symptoms of myalgic encephalomyelitis. But there’s so much more beyond the clinical terms and symptom lists. Here are just a few of the hidden realities, along with a few hidden tricks!Read More
When you see me, I will always smile, ask you how you are and share a kind word or compliment. If you are sad, I will listen; if you are happy, I am happy for you. In fact, I love people, listening to them, helping them and bringing happiness to their lives when I can. All of this is the essence of who I am and is all very genuine. Except for one thing.Read More
The doctor walks into the room and gives me my diagnosis – myalgic encephalomyelitis (ME). Finally, a name (and what a name!) to what has been happening. A sense of relief actually washes over me. Almost a weird sense of elation.Read More