MINNESOTA ME/CFS ALLIANCE
 
 
 
 
 
 
 
 
 
 

Land of 10,000 Lakes and 17,000+ Missing

 
 
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Sharing the journey of awareness, education, and support for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

 
 
 

Our Mission

The Minnesota ME/CFS Alliance is dedicated to serving Myalgic Encephalomyelitis / Chronic Fatigue Syndrome patient and caregiver needs through support, advocacy, and generating enhanced medical care options. We work to unify the ME/CFS community, actively expand awareness of this disease, and educate the healthcare professionals. Our goals are to promote a timely diagnosis with qualified medical support, alleviate patient suffering, and support research for a cure for this underserved and vulnerable population.

 

The Basics

The Basics: A Guide to Learning, Sharing and Making a Difference in Chronic Fatigue Syndrome (ME/CFS)
by Cort Johnson. December 18, 2018

In 2018 chronic fatigue syndrome (ME/CFS) finds itself in an unsettling place: it’s a common, serious disease that can cause profound levels of disability and distress but which gets little respect or funding. Read more.

 
 
 

TEDSummit | June 2016

Five years ago, TED Fellow Jennifer Brea became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome, a debilitating illness that severely impairs normal activities and on bad days makes even the rustling of bed sheets unbearable. In this poignant talk, Brea describes the obstacles she's encountered in seeking treatment for her condition, whose root causes and physical effects we don't fully understand, as well as her mission to document through film the lives of patients that medicine struggles to treat.

 
 
 
 
 

Minnesota ME/CFS on Twitter

 
 
 
 
 
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Dedicated to change

We are committed to changing the landscape for the estimated 17,000 to 42,000 Minnesotans with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. Through support for lives affected, advocacy, clinician education, and research we hope to end decades of neglect for this devastating, invisible illness that leaves 75% unable to work, including 25% home or bedbound. Please join us as we make the seemingly impossible, possible.